16-month-old Lock Samples is one of just 100 people known to have the extremely rare condition that causes his hair to be fragile but else leaves him healthy.

Locklan Samples, who is now 16 months old, was born with jet-black hair similar to his mother Katelyn’s. That dark hair, however, had been replaced by “peach fuzz” by the time he was six months old, according to Katelyn and her husband Caleb.

“Uh, what exactly is this?” we inquired. Locklan’s, sometimes known as Lock’s, recent blond, silky hair is described by her. “Although we were aware of the distinction, we were unsure of how to make it.” Following that, it continued to grow.”

Lock had white-blond, very soft hair sticking straight up from his head before the age of nine months. Although the hue resembled that of his 3-year-old brother Shep’s hair, the texture was diametrically opposed.

Katelyn, 33, from Roswell, Georgia, laughs, “People were definitely noticing it.” At the same time, she received an Instagram message from an unknown individual inquiring if Lock had been diagnosed with “uncombable hair syndrome.”

“What in the world is this?” “Does my baby have a problem?” she asks. Google says, “I spun out of control.”

Katelyn phoned their pediatrician, who informed her that they were unaware of the syndrome and offered her the contact information for a specialist at Emory University Hospital, which was nearby.

“When we went to see her, she said she’d only seen this once in 19 years,” Katelyn explains. Because uncombable hair syndrome is so rare, “she didn’t think it was uncombable hair syndrome,” but they took samples and a pathologist analyzed them under a special microscope.

After evaluating Lock’s hair structure, they discovered she had uncombable hair syndrome, a somewhat uncommon condition that causes hair to grow with a highly fragile and easily breakable texture. A lock is one of the 100 known cases of the illness.

It was a surprise to find that Lock had this sickness at first.

“As you go about your daily routine, you assume that everything is fine and that your child may have curly hair because it runs in the family.” “And then to find out your child has a rare syndrome was crazy,” Katelyn added.

Fortunately, it appears to be limited to Lock’s hair.

“They said we didn’t need to worry about anything else being an issue because he was developing properly in every other part of his life,” she recalls.

Katelyn tried to find out more about the syndrome, but there isn’t much information online or among professionals due to the rarity of occurrences. However, she did discover a Facebook group for parents of children with the syndrome or those who themselves have it.

We exchange images and have a variety of conversations, she says, adding that it has been a great source of comfort. It’s interesting to observe how the hair of older children has evolved with time. For some, it remains, while for others, it gets a little bit easier to handle.

Katelyn is pleased for the time being to let Lock’s hair “simply be in its free shape.”

She argues that because it doesn’t get greasy, she just needs to wash it while he’s playing in the mud. “Because it is so soft, people are constantly drawn to touch it.” I hardly brush it because it is so fine. I just try to be gentle with it and avoid interfering until absolutely essential.”

And, as Lock grows older and the inevitable comments and concerns about his hair continue, Katelyn intends to teach him to accept his uncontrollable hair.

She claims, “I would say that 98% of people are really kind and enjoy it.” “They liken him to a young rock star.” It makes people’s faces light up. And for now, while he’s young, he appreciates and isn’t bothered by the attention. However, regardless of disparities, we hope to instill in each of our children a sense of self-assurance.”

“And that a little bit of standing out is cool.”